haei.org

HAEi International Patient Organization for C1 Inhibitor Deficiencies International Patient Organization for C1 Inhibitor Deficiencies

HAEi is the international umbrella organization for the worlds Hereditary Angioedema HAE patient groups. HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients no matter where
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OVERVIEW

The web page haei.org currently has a traffic ranking of zero (the lower the higher page views). We have examined twenty pages inside the site haei.org and found ninety-four websites interfacing with haei.org. We were able to discover two contacts and addresses for haei.org to help you reach them. We were able to discover four social web platforms belong to this website. The web page haei.org has been on the internet for one thousand and ninety-seven weeks, ten days, fifteen hours, and fifty-two minutes.
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20
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94
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2
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2
Social Links
4
Online Since
Mar 2004

HAEI.ORG TRAFFIC

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HAEI.ORG HISTORY

The web page haei.org was created on March 13, 2004. It is now one thousand and ninety-seven weeks, ten days, fifteen hours, and fifty-two minutes old.
REGISTERED
March
2004

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21
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LINKS TO DOMAIN

Angioedema Hereditário

Sábado, 16 de maio de 2015. Dia Mundial de Conscientização do Angioedema Hereditário. Algumas vezes, os inchaços acontecem dentro do abdome e levam o paciente a ser internado com suspeita de apendicite ou de obstrução intestinal. Isto causa cirurgias desnecessárias e pode ocasionar muitos problemas. 2- Pode ocorrer em qualquer pessoa, como qualquer outra condição genética.

Associazione volontaria per la lotta, lo studio e la terapia dellangioedema ereditario

22 - 23 magio 2015. Sabato 23 in mattinata, si parlerà di angioedema ereditario. DIARIO 2015 Scarica il diario in. 29 novembre 2014 - Milano. Cosa fare in caso di emergenza.

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Heimtherapie mit Berinert, Cinryze, Firazyr und Ruconest. Herzlich willkommen auf unserer Homepage! Bericht und Bilder vom 11. Replik HAE-Austria 2017 von Adelheid Huemer. Bericht Pharmig Academy Diagnose,. Bericht Fest der Seltenen Erkrankungen. Erste Schritte nach der Diagnose. Wiednig ist unter 0316-385-30061 erreichbar.

Občanské sdružení na ochranu pacientů s hereditárním angioedémem

Iveta Maselli - předsedkyně sdružení. Advokacie ve prospěch dostupnosti léčby. Cílem Občanského sdružení je ochrana pacientů s hereditárním angioedémem.

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CONTACTS

HAEI - International Patient Organization for C1 Inhibitor Deficiencies

Henrik Balle Boysen

Kirstinelundsvej 7, c/o gda:

Skanderborg, unknown, 8660

DK

45.31591591
hbb@gdaclassic.dk

Host Europe GmbH

Host Europe GmbH

Welserstr. 14

Koeln, DE, 51149

DE

49.8004678387
support@hosteurope.de

HAEI.ORG SERVER

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HTML TITLE

HAEi International Patient Organization for C1 Inhibitor Deficiencies International Patient Organization for C1 Inhibitor Deficiencies

DESCRIPTION

HAEi is the international umbrella organization for the worlds Hereditary Angioedema HAE patient groups. HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients no matter where

PARSED CONTENT

The web page haei.org had the following on the web page, "How can HAE be treated? News Events." We saw that the website said " HAEi Youngsters Summer Camp 2017." It also said " In Vienna we set the scene. Take control of your HAE. TAKE ME TO THE CONFERENCE PAGE. You are not alone! Let me join the HAEi family. Plan a safe trip with the HAEi world map. TAKE ME TO THE MAP NOW! Six hour drive from any major hospital. This gives you a whole new perspective on life."

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